CF 101: The Ultimate Go-To Guide for Cystic Fibrosis

In collaboration with Foundation Care Pharmacy and my nonprofit, The Blooming Rose Foundation, I developed CF 101: The Ultimate Go-To Guide for Cystic Fibrosis—a comprehensive resource designed to equip individuals and families with essential knowledge for navigating CF. The first edition spanned nearly 150 pages, followed by a 50-page update, making it one of the most extensive and accessible CF guides available.

More than just a resource, CF 101 became a vital tool in bridging the gap between clinical expertise and real-world experience. To maximize its reach, it was printed and distributed nationwide—delivered not only to every newly diagnosed family using Foundation Care Pharmacy for prescriptions but also to all 120 Cystic Fibrosis Foundation-accredited care centers across the U.S. This widespread distribution ensured that both patients and healthcare providers had immediate access to critical, up-to-date information, reinforcing CF 101 as an essential cornerstone of CF education and support.