Current Roles

✔ PRIDE CF Coalition – Coalition Member (2023–Present)
Contributing to the national initiative focused on improving equity and inclusion for LGBTQ+ individuals within the cystic fibrosis community.

• Providing insight on psychosocial and advocacy needs through a trauma-informed and health communication lens.

• Collaborating on strategies to educate providers, support patients and families, and develop inclusive CF care practices.

• Supporting the creation and dissemination of training resources, community engagement, and program development.

✔ Society for Transplant Social Workers (STSW)- Mental Health Focus Group Member (March 2025 – Present)
Serving on the STSW Mental Health Focus Group to develop a Consensus Statement outlining evidence-based factors in transplant candidacy.

• Contributing to the identification of interventions that optimize transplant eligibility through research and experience-based practice.

• Participating in monthly virtual meetings, group collaboration, and the 2025 STSW Conference in Orlando.

Past Advisory & Board Roles

✔ Cystic Fibrosis Foundation – Mental Health Advisory Committee (2017–2023)
✔ Harvard – Child & Family Patient-Centered Outcomes Research Scholars Program (2017–2023)
✔ Academy of Nutrition & Dietetics – CF Workgroup & Pediatric Nutrition Guideline Panel (2017–2020)
✔ Gilead CF Opinion Leader Advisory Board (2017–2022)
✔ Cystic Fibrosis Research News, Editorial Board (2016–2022)
✔ Cystic Fibrosis Foundation – Partnerships for Sustaining Daily Care Committee (2017–2021)
✔ Genentech – Pulmozyme Community Advisory Board (2015–2022)
✔ Cystic Fibrosis Foundation, PRFAC – Patient & Family Research Advisory Committee, Communications Team (2016–2023)
✔ Exocrine Pancreatic Insufficiency Coalition – Coalition Member (2019–2022)
✔ AbbVie – iCAN Advisory Board Member (2012–2018)