Board & Advisory Work
Current Roles
✔ PRIDE CF Coalition – Coalition Member (2023–Present)
Contributing to the national initiative focused on improving equity and inclusion for LGBTQ+ individuals within the cystic fibrosis community.
Providing insight on psychosocial and advocacy needs through a trauma-informed and health communication lens.
Collaborating on strategies to educate providers, support patients and families, and develop inclusive CF care practices.
Supporting the creation and dissemination of training resources, community engagement, and program development.
✔ Society for Transplant Social Workers (STSW)- Mental Health Focus Group Member (March 2025 – Present)
Serving on the STSW Mental Health Focus Group to develop a Consensus Statement outlining evidence-based factors in transplant candidacy.
Contributing to the identification of interventions that optimize transplant eligibility through research and experience-based practice.
Participating in monthly virtual meetings, group collaboration, and the 2025 STSW Conference in Orlando.
Past Advisory & Board Roles
✔ Cystic Fibrosis Foundation – Mental Health Advisory Committee (2017–2023)
✔ Harvard – Child & Family Patient-Centered Outcomes Research Scholars Program (2017–2023)
✔ Academy of Nutrition & Dietetics – CF Workgroup & Pediatric Nutrition Guideline Panel (2017–2020)
✔ Gilead CF Opinion Leader Advisory Board (2017–2022)
✔ Cystic Fibrosis Research News, Editorial Board (2016–2022)
✔ Cystic Fibrosis Foundation – Partnerships for Sustaining Daily Care Committee (2017–2021)
✔ Genentech – Pulmozyme Community Advisory Board (2015–2022)
✔ Cystic Fibrosis Foundation, PRFAC – Patient & Family Research Advisory Committee, Communications Team (2016–2023)
✔ Exocrine Pancreatic Insufficiency Coalition – Coalition Member (2019–2022)
✔ AbbVie – iCAN Advisory Board Member (2012–2014)